A Little Humor... Please

on 10 17, 2009 | 20 Comments

"You Can't Have That or You'd Be Dead By Now"

Sharing ridiculous comments made by doctors can be a bittersweet form of validation for patients. For a little bit of fun (I figured we could use it), I originally created a discussion thread o

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Getting Doctors to Take You Seriously

on 05 17, 2009 | 27 Comments

How to Get Your Doctor to Take Your Undiagnosed Condition Seriously

Imagine sitting in an exam room waiting for a doctor you haven't met before to walk in. Whether you've got an unexplained stabbing pain in your side, crippling headaches or life-threatening heart prob

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Journey to Diagnosis

on 03 4, 2011 | No Comments

World Undiagnosed Day

In the spirit of the international Rare Disease Day on February 28th, I’d like to personally declare March 5th World Undiagnosed Day. Patients who are undiagnosed often share a long road of searc

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Letters to Doctors

on 02 1, 2010 | 2 Comments

A Plea from a Patient Advocate to Doctors and Patients of Pituitary Disorders

I'm pleased to feature this article by guest author Sharmyn McGraw. As a thriving survivor of Cushing's Disease, a life-threatening pituitary disorder, Sharmyn has personal insight into the pl

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Quality of Life

on 01 2, 2011 | No Comments

The Sick Person’s Guide to Surviving Holiday Hooplah

(I originally wrote this post for the Pituitary Network Association's monthly newsletter January 2011 edition.) No matter how important the holidays are to you, it’s hard not to feel heightened e

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Understanding Tests & Treatment