About Take Us Seriously
Ellen on 03 21, 2010
Founded by a patient who sought a correct diagnosis for more than 30 years, Take Us Seriously is a non-profit organization that helps undiagnosed and misdiagnosed patients.
In addition to this blog site, the author is compiling patient stories for a book. If you would like to provide examples of how doctors’ decisions impacted you positively or negatively, and ideas for how your situation could have been improved, please read Share Your Stories.
To read more about the author, look for posts in the A Patient’s Perspective section.
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Books & Articles for Patients
- "Advice to Reduce 'Fast and Frugal' Cognitive Errors in Diagnosis" Blog Post
- "But Doctor You're Wrong"
- "How Doctors Think"
- "How to Be Sick"
- "How to Find Dr. Right"
- "Medical Decision Making" Academic Journal
- "Think Like A Doctor" NY Times Blog
- "What to Do When Your Doctor Doesn't Know"
- The Empowered Patient by Elizabeth S. Cohen
- Ultimate Healing Reference Books
- YOU: The Smart Patient: An Insider's Handbook for Getting the Best Treatment
- “What’s Wrong with Me? The Frustrated Patient’s Guide to Getting an Accurate Diagnosis”
Choosing Doctors & Healthcare Coaches
Diseases & Conditions
Group Support for Patients
Inspiration
Managing Medical Costs
Medical Advocacy
- AdvoConnection: Linking Patients to Excellence in Health Care Assistance
- Best Doctors – Diagnostic Service for Employers
- Free ICE medical info wallet card
- In Need Of Diagnosis, Inc. (INOD)
- Invisible Disabilities Association
- Patient Advocate Foundation
- Patient Power
- Sharmyn McGraw
- So You Want to Be a Patient Advocate?
- Society for Medical Decision Making
- Society for Participatory Medicine
Wonderful site! So glad you were able to finally get a validating diagnosis….I totally understand your journey to a diagnosis.
Thank you very much, Susan! I’m glad you posted a comment, as I hadn’t seen your site yet — as I read through it, I learned more about the symptoms of Dercum’s than I had previously. Thank you for such a nicely organized and informative site, and I wish you all the best.
Hi, there’s a new program helping patients with undiagnosed conditions. Please share this information to those in need!
Casting a new series on a major cable network:
Looking for candidates with undiagnosed medical ailments…
WHAT’S WRONG WITH ME?
All across the country people have mysterious illnesses preventing them from moving on with their lives. Often at their wits’ end, most doctors have written them off. Dr. Eric Braverman, a brilliant New York City doctor, and his team try to diagnose these problems. Through therapy and cutting edge technology and tests, Dr. Braverman and his team determine what is wrong.
Looking for Candidates in the New York Tri-state area who would like a free medical evaluation and possible treatment.
If you or someone you know are suffering from a mysterious illness
Please send us an email here and tell us your story:
parkslopecasting@gmail.com
Thank you, Joanne, for letting us know about this new upcoming series, and recommending helpful resources.