Share Your Stories

on 03 21, 2010

Patients, Health Care Workers & Patient Advocates: Share Your Stories & Help Others

What have you learned from your health care experiences? Are you:

  • a patient who is undiagnosed, searched a long time to get a diagnosis, received a wrong diagnosis, or have a diagnosis and struggle to get effective treatment and support?
  • a health care practitioner who has learned through experience valuable information that you wish more patients knew?
  • a patient advocate or support group leader?
  • a health care support worker in health insurance, pharmaceuticals, medical device manufacturing or clinical laboratories?
  • a life coach, psychologist or medical coach?

I’m writing a book…

If you have a story to tell about your experience with health care that you believe would help others find better health care sooner, cheaper or easier, please contact me. I’m writing a book that is a guide to making smart health care choices, and I know that the wisdom learned from your experiences is valuable and should be shared. The published stories will be general enough to protect the privacy of all involved parties.

I’m looking for stories that taught you:

  • the great things and not so great things about how the US health care system currently works
  • an important lesson about yourself and your health
  • patient stories and health care articles that have been published on the Internet that you found were very helpful
  • tips and strategies for getting doctors to take patients seriously
  • inside secrets of the industry that you know would help patients get better care
  • examples of outstanding health care professionals
  • positive, memorable experiences of healing, happiness and the value of life

You should know:

  • Confidentiality will be observed. No story published will reveal specific information about patients, doctors, medical facilities or contributors.
  • As the contributor, only your first name, last initial, city and state will appear in the book.
  • Please only provide details you don’t mind sharing with strangers.
  • I will give you an opportunity to review your story for accuracy and privacy before I submit it to a publisher.
  • By submitting your story, you agree to allow me to publish it in one or more books, provided you are notified that your story will be published in each book.
  • To protect the confidentiality of others, stories should only be submitted by the person who experienced them first hand.
  • All stories will be reviewed by medical professionals or patient advocates to make sure the information provided will be of good use for patients.
  • It is possible this book will never be published, or that your story may not be included in the final publication. Submitting your story does not guarantee it will be published in any book.

How to submit your story:

If you would like to find out more, or submit your stories, contact me by email. Please provide a 1-2 paragraph summary of your story, and be sure to explain why your story would be important for patients seeking quality health care to know. Include your first name and an email address or phone number where I may contact you if I have questions about your story.

Let’s work together as a community united in caring to create a great guide that supports, encourages, educates and inspires patients who deserve the best quality of life they can have!

Ellen B., the Bullet Point Blogger
Read more about me…

Comments (2)

 

  1. David Friedman says:

    I have a 9 year long undiagnosed progressive illness and am very interested in sharing my story and seeing if there’s a way of getting help that I have not thought of. I can email you my story if you send me your email address. My email is (removed for privacy).

    Thank you and I look forward to hearing from you.

    David Friedman

  2. Mahngericht…

    Great. Thanks for sharing!!!…

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